Diabetes Forum UK

1)  Don't Panic.

We all panic at first.  Its a great shock to be diagnosed and all sorts of things run through your head.  There seems to be so much to learn and its all a bit much.  You dwell on the negatives and the future looks bleak.

However, its not as bad as it first appears.  With a little knowledge and advice from experienced diabetics you'll find that you are able to manage, understand and deal with diabetes.

So calm down, take a deep breath and I'll run you through the first steps of what you need to know to make sure that diabetes has as little impact on your life as possible.

2)  It is NOT your fault that you got diabetes.

The media are fond of telling us that its all our fault from being fat and lazy.  They are wrong.  You may be blaming yourself for bringing this condition on yourself.

Heres a quick explanation:

Diabetes Myths #1 - Its all your own fault

And a more detailed explanation for the more technically minded:

You Did NOT Eat Your Way to Diabetes!


3)  Diabetes affects everyone slightly differently

You are an individual and you will respond to different things in a slightly different way to everyone else.  Some people have a problem with a particular food where others do not.

Some people experience awkward side effects with some medications and some do not.

Just because one person has a particular problem does not mean that you will automatically face the same problem.  So when someone is telling you a horror story in relation to diabetes and its effects on someone, do not automatically assume it will happen to you too.

4)  Type 2 Diabetes can generally be controlled and its not as bad as it first appears

There are three tools to control type 2 diabetes.  Medication, exercise and diet.

a)  Medication

Do not be afraid of medication.  It can be daunting to think of things in terms of "I am going to be on these pills for the rest of my life".  The thing is, the pills help to reduce the dependence on diet and exercise and make control easier.  Some people can manage diabetes without using pills but it is generally harder and you have less margin of error for slipups and "cheats".  So it can give you a bit more freedom for the times you need that extra flexibility.

Never think that needing medication means that you are in any way a "failure".  By the time some people are diagnosed they will need medication.  It may be that some time later they will not require it, or that they always will.  Dosages and drugs are changed routinely so suit the individual patient.  It doesn't matter if another person has something different because its tailored to them and making their life easier.  So long as your medication is what YOU need, thats all thats important.

b)  Exercise

Exercise helps to keep your blood glucose down.  The effects last to some degree for 24-48 hours, so your blood glucose control is easier for the next couple of days.  It can also be used as a short term fix to reduce your blood glucose if you go a little high.

c)  Diet

Right now you are thinking in terms of "I can never eat X, Y and Z again".  The truth is a little different.  The best approach found by diabetics across the world is to see how certain combinations of foods affect you personally.  Then you can make future choices based on those results.

For example, through testing the effects that different meals have on my blood glucose I can now find something on any takeaway menu or in any restaurant that I can "get away with".

And no, its never the salad.

The way to test how foods affect your blood glucose is here:
http://diabetesforum.org.uk/jennifers-advice

I would add that I take the extra step of testing just before a meal and an hour after rather than 2, to see the difference.  You can get a fair idea from Jennifer's method of how your blood glucose is affected, but if you know your BG reading before the meal as well, you can see how much of a rise a particular meal caused.

You may find something different works for you.  The important thing is that you learn from it and gain greater control in the future.

5)  Its not about sugar.

Its one of those things that "Everybody knows....." that diabetes is about sugar.  Its not.

Its about ALL carbohydrates.

I go into more detail here:

Diabetes Myth #2 - Its all about sugar

6)  There is no "cure"

Anyone who tells you there is, is just after your money.  You can't just take a vitamin supplement, some magic herb or some very expensive water and have it go away


Thats a lot of information to start with.  Take your time.  You don't have to learn everything overnight.

However, knowledge is power.  The more you learn, the better you will be able to control diabetes, rather than it controlling you.  Also learn from diabetics.  If they have learned from testing and read up a lot on the subject, they often know a lot more than a general practitioner (GP/Family Doctor) does.

Note:  I was diagnosed in Oct 2003 with an HbA1c of 10.8% and put on metformin immediately.  Since the first 6 months while I was learning and getting my blood glucose under control I have not logged an HbA1c over 6.0% - which is non-diabetic numbers according to the DCCT trial.

In January 2011 having had a period when I "fell off the wagon" and stopped taking my pills, I still managed to clock an HbA1c of 5.5%.  I am no longer prescribed metformin as a result.  Rather than go downhill and be on insulin after 7 years as some people might expect I've managed to improve to the point where I can drop the pills.  I'm still diabetic but its all controlled mostly "on autopilot" without having to think about it constantly.

I've been lucky but by learning and with a bit of luck I hope you have the same outcome.

A friend of mine had an ultrasound and it was discovered she has a cyst on her ovary. Not uncommon. My friend has a slow-growing glioma in her brain - CANCER. Her gynecologist ordered her to get into the office the next day, so my friend was quite distraught, as you can imagine.

"Are you in any pain," I asked.

"No," she replied.

"Did you know you're a marked woman among medical professionals?"

"I am?"

I went on to explain how her doctors are going to now keep an extra keen eye on things like this because of the cancer. I told her how they will look to see if any abnormality in her body was cancerous from now on. I let her know that I could be hit by a bus and they would say I died from "complications of diabetes."

I asked my friend to let me know how it went after her appointment with the gynecologist. I am pleased to say I received a text saying, "You were right. I just have to get another ultrasound in a month." 

The following blog is the first chapter in my book: Beating The Odds, 64 Years Of Diabetes Health. It was published in March, 2010 on amazon.com.

CHAPTER 1....My Early Years and Diagnosis

September 15, 1945 was the day. We had an appointment with a doctor in Salem, Virginia that day. He had ordered a blood sugar test to be done prior to that appointment. Mother and Daddy did not know what that test involved, or anything at all about "blood sugar". They had watched my health deteriorate over the preceding months and my pale, skinny body clearly showed I was very ill. There was much weight loss and no appetite. My other symptoms included drinking much water and passing urine frequently, in large amounts. I was weak and had very little energy for several months. My poor health began in early 1941.
I was born Richard Alvin Vaughn in Roanoke, Virginia on September 10, 1939. When I was two years old I had measles that settled in my ears. There was a fever that made me very sick. Mother told me I had three kinds of measles in nine months time. There was infantile measles, German measles (Rubella) and Red measles. Perhaps those illnesses lowered my resistance and began a spiral that led to more sickness in the years ahead.

In May of 1942 I had a hernia on my right side near my hip joint. It ruptured and I had to wear a truss. The rupture became worse and surgery was needed. There was such a long stay in the hospital that I had to learn to walk again.
My tonsils were removed later that year. There was some bleeding the first night after returning home and there were splotches of blood on my face the next morning. My parents thought that my throat had been bleeding. They took me to the doctor. He said rats had been biting me and had bitten through my lip. The rats had smelled the blood from the surgery. Mother's story did not say what was done to eliminate the rats. I do remember that big rat traps were set to catch rats while we lived in that house.

In early 1945, at five years of age, I had chicken pox and mumps, both within a few months time. Because of my previous illnesses and my hernia, I was already rather skinny and not very healthy. After partially recovering from the chickenpox and mumps I started losing weight and by mid-summer I was skin and bones. That was when all those symptoms began.
We saw a doctor but he had no diagnosis and he prescribed a tonic to help me regain my appetite. The tonic probably contained sugar and was most likely much the same as the old "snake oil" remedies that were not uncommon back then. The tonic was ineffective and we saw a second doctor. Still no diagnosis and it was the same with a third doctor. Mother and Daddy never gave up though and we saw a fourth doctor. He was the one who recognized my symptoms.

Despite my condition, my parents enrolled me in first grade at a nearby elementary school. There was a bathroom in one corner of the classroom. I spent much time there. Mrs Thompson, the teacher, became very annoyed with this despite the fact that Mother had explained my symptoms to her. Not long after school began that fall we were called and my parents were told that we should see the doctor the next day.

It is strange that I can remember where my family members stood in the doctor's office that day. Mother sat to my left and Daddy stood behind us with my two year old sister, Shirley, in his arms. It is easy to remember that day so clearly because there was a look on Mother's face that scared me when the doctor announced my "sugar diabetes". That expression on Mother's face is something I will never forget.
The doctor did not say a lot about my disease. He said that they should take me to the hospital and that there would be another doctor who would meet us there. We were told that doctor knew a lot about sugar diabetes and he would be my doctor in the years ahead. Mother was too frightened to say much. Daddy said nothing. Mother was always the one to ask questions in a situation like that, but this time, even she was almost speechless.
We met Dr. D. for the first time at the hospital. They gave me insulin and said that it would make me healthy again. The insulin was called beef and pork insulin because it was taken from cows and pigs. He told Mother and Daddy to never give me sugar, or any food containing a lot of sugar. Those were the only instructions Dr. D., the "diabetes expert", had for us. He was a far cry from an endocrinologist but we were told that he was the best doctor for diabetes patients in the Roanoke-Salem area at that time. Doctors knew so little about diabetes in the 1940s.

My stay in the hospital is all a blur, but the insulin did great things for me in a short time. My appetite was good and there was some weight gain. Insulin from pigs and cows saved my life and I regained much of my health. Insulin was discovered in 1921 and first sold in 1923. It was there for me only 22 years after it was first available.

So there we were with vials of insulin taken from animals, a glass syringe, and metal needles that were twisted onto the end of the syringe. The syringe and a needle were sterilized by boiling them on top of our stove every morning. Daddy gave one injection before breakfast each day. The insulin was a twenty four hour insulin.
We also tested my urine for sugar prior to my injection. A blue liquid called Benedict's solution was poured into a large test tube, and 8 drops of urine were added. Then the tube was placed upright into a metal container and the water in the container was boiled. When the tube was removed the solution would progress in the colors of blue (with no sugar present), green, yellow, orange, red, and brick red or brown (with very high sugar present). A color change would indicate the presence of sugar. My urine was checked only once each day.
The needle was very long. It may have been about three quarters of an inch in length. We were instructed to stick the needle directly into the muscle on my arms or the top of my upper legs. The diameter of the needles was greater than the ones used now. That was necessary so that a piece of wire could be inserted to unclog them. The injections were very painful. I remember them very clearly.
My 6'th birthday was on September 10 that year and my diagnosis was on September 15. There was so much sickness from the symptoms of my diabetes. It was not a very happy birthday.

At six years of age I was too young to understand what was taking place. Candy and other sugar treats were not allowed and I am sure that disappointed me. There was really no other change in my rather normal life, except for the morning injections. Insulin made me healthy again and life went on as usual. I was a hapy and carefree kid. None of us knew how serious diabetes could be at that time.
I had also been a happy child before my diabetes symptoms began. There were blackouts in 1942 during World War II. On certain nights people had to turn out all their lights, in case of an attack. My old postage stamp collection contains some of the ration stamps my parents used during the war. After the war ended and the Allies were victorious, I went out in the backyard and ran about yelling that the war was over. The war having ended meant nothing to a five year old boy, but my parents were excited and some of their enthusiasm must have rubbed off on me. There are many things from my preschool years that are easy to remember.

Daddy and me, 1939




Mother had her appendix removed in late 1942. She was hospitalized for ten days. While she was there she learned she was pregnant. She also developed asthma and stayed very sick and nauseated until my sister, Shirley Ann Vaughn, was born on June 24, 1943.
Shirley was my first playmate and, as she grew older, we had good times together. We loved each other very much. Mother and Daddy did not have many friends. There were no other children in our neighborhood, so Shirley and I developed a very close relationship.
Pictures made before my diabetes symptoms.


Mother wrote her own story when she was in her 80's and she only briefly mentioned my diabetes diagnosis. She did not say anything about the months leading up to the diagnosis, or the trauma in the months that followed. My parents were devastated by my diabetes and not knowing how to care for me. The memories were probably too painful for Mother, and she chose not to include the details of that part of her life in her story. It is impossible for me to remember all of what happened back then, but my parents told me all the details years later.

My picture in first grade, age 6

In my opinion all GP's, endocrinologists, and anyone else involved in the care of diabetes should be SHOT - with a little rapid insulin, that is. That way they would know what a hypo really feels like, not just symptoms on a page. Let them know how unpleasant the whole hypo business is. Perhaps this would stop them from thinking those of us who strive for good control are trying to go hypo to keep a good A1c, even when we show them numbers that say otherwise.

Let them get really low. Make them experience the mood swings, the shaking, sweating, and all the other lovely (not) things that go with the low. Let's see how dumb they feel when we lowly lay people have to tell them about the one thing they NEVER tell us about - the dreaded hypo hangover! Let them know that the work note should say "In case of low blood sugar, patient must go home." We need to sleep that hypo hangover off, not feel rotten and exhausted the rest of the day! 

I can't say I've ever seen any publication that even mentions the hangover. Has anyone else? Perhaps it's just another of those mysterious things that one can only learn from experience or from the experience of a fellow diabetic.